Monday, December 2, 2013

The surgery is over...



(3:30) Well the surgery is almost over but the news is not very good.

Bert is being closed up right now by the cardiologist.

The tumor was the largest they have ever seen.  They estimate that the tumor was 10 or more pounds.  It invaded several areas of tissue including part of his pathway for breathing on his right side.  They estimate that this tumor has been growing over a period of years.

The thing that is the most worrisome is that the tumor invaded his heart wall.  They were not able to remove it completely without compromising his heart.  If it wasn't cancer, they would have opted for a heart transplant, but since it is cancer, he would not be eligible to receive a transplant.  Instead they left a sliver of the tumor that is attached to his heart.

The follow-up will include radiation and chemo to treat what they left behind.

The parathyroid removal was quick and without incident.

Once the surgery is complete, he will be taken straight to the icu, kept on the ventilator, and will be sedated through the night.

He should be able to rest through the night and put into a room at some point tomorrow.

His lung was not impacted at all.

I am headed home and will return to the hospital after I drop Kasey off at the train station in the morning.

If anything changes, the dr and/or nurse will call me.

 I will post if I hear anything else.

And it continues!



(2:45) The surgical nurse came out and let us know that the surgery is taking longer than expected, it's bigger than expected, and very close to his heart.  

He is not in distress and both doctors are working together to get it all out.  It will be a while longer!

Will update when we get more info.

And so it begins!

(11:14) Albert went into surgery at 11am, it should take about 3 hrs!!

The time stamp is two hours off...

Playing the waiting game!

Still waiting to get started.  Apparently the surgery before us ran long, so they are cleaning the OR and it will be at least another hour from now!!!

Ready, set...


All checked-in!!  Ready to go!

Sunday, December 1, 2013

The big day is tomorrow!



Yikes!  Now we are both crazy nervous!  The surgery is in the morning and Albert is packing his bag for the hospital stay.

You all are asking how you can help, but honestly, I just don't know!  I love that you all care so much and please know that I will holler loudly when I figure out what I need!

We are headed to bed to see if we can even sleep a wink, we are leaving the house at 6 AM!  He has to check in at 8:15.  We are not sure how long it will take, but I will use this blog to keep posting updates.

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Love you all!  Nighty-nite!

The "short" of a very long story!



It all started this past Spring.  Albert and I went to see the dentist and our dear friend and hygienist, Stacy, refused to treat him because he had such HIGH blood pressure.

Shock!  For decades, he has had low blood pressure, never high.

Friend to friend, Stacy advised me to insist that Albert see a doctor THAT day!  So he saw an available PA and was put on high blood pressure medication immediately. 

The second blip?  Initial bloodwork showed elevated blood calcium levels.

Follow-up: changed medication to include diaretic in high blood pressure meds.

Follow-up: blood calcium levels elevating, not dropping.

Next stop: endocrinologist!

Great endocrinologist, really like her!  She immediately changes Albert's meds to stop the diaretic THAT DAY!

Diagnosis: hyperparathyroidism.

Dr ordered: ultrasound of throat and neck area, 24 hour urine collection, complete lab work, bone density test.

Follow-up and diagnosis:  further elevated blood calcium levels, osteoporosis of the spine, osteopenia of the hips, need surgery to remove the haywire parathyroid, and need a radioactive scan to find the parathyroid in question.

Next stop: surgical endocrinologist!

OMG!  Love her even more!!!!

Dr ordered: new scan to get much better picture of area and identify the malfunctioning parathyroid.

Follow-up:  found the parathyroid!  AND SOMETHING ELSE!

Next stop: biopsy of tumor found during prior scan.

Follow up: biopsy results show nuero endocrine carcinoma of the thymus gland.

Next Stop: cardiologist.

Is it possible????  LOVE him!!

Follow up: schedule surgery to remove BOTH parathyroid and cancerous tumor.

Fast forward to today: the surgery is in two days and my husband is a nervous wreck!!