Thursday, January 7, 2016

Victory Lap!


Bert is doing his victory lap, through the tunnel...
_______________

Today was WOW, just WOW...

To think that this morning he was on the operating table cutting out cancer (NET) and now he is practically RUNNING laps in the hallway...  (OK, so it's more like speed walking!!)

But seriously, he really is a very strong, courageous person who is NOT letting the disease win!

Our little support group, Laura, Ellen, Karen and Jennifer...y'all got us through this crazy day!!!!! Thank you from the bottom of our family's heart!!!

Visitation, yay!!!


Love, love, love that smile!!!!!!!

Bert's surgery is over!!

So, he made it out of surgery!!

The surgeon said everything went well, no surprises!!!!


surgery started at 7 am, central time

completed a puzzle as a family this morning, waiting to be called back...

he was taken back at 7, and it should take about 2 1/2 hours...


i will let you know when i get an update from the doctors...

Surgery Day is here...


Today is the day...we are all checked-in and ready to get rid of a NET tumor behind his lung and several nodules on his diaphram...

Gonna kick cancer's ass, again...

Wednesday, December 2, 2015

Two Years Ago...

(pic: October 31, 2015)

Today is the two year anniversary of Albert's surgery (cancer resection).

On that day, December 2, 2013, we almost lost him.   His bleeding required several pints of blood.  The tumor was just too big, too invasive, too far into his heart.

The surgery was supposed to take 2 hours.  About 3 hours in, the nurse came out and told us that things did not go as expected.  She looked me in my eyes, at the verge of tears in her eyes, they were doing all they could for him.  And they didn't know how much longer it would take.

Five and half hours later, he had two large incisions, (a sternotemy on his chest, plus an unexpected horizontal one on his side), 4 broken ribs, a severed phrenic nerve, a paralyzed lung, a breathing tube, a chest drain, large portions of active cancer on his heart and was barely conscious BUT he was stable.  He made it.  The surgeons said they were amazed at his strength, his resilience, his will to live.

If they knew the extent of the tumor before they opened him up, they would have deemed it inoperable.  INOPERABLE.   It had invaded most of the right side of his chest cavity and was growing out and around to his back.  It was getting blood flow from hundreds, if not thousands, of blood vessels.  Every other organ on his right side was feeding this tumor.  It settled deep into his heart, kept steadily growing until it invaded his right atrium and had grown into the deepest layers of his heart.

The surgeons spent hours disconnecting this tumor from each and every blood vessel, one at a time, cauterizing  each thread...one by one.  They spent hours meticulously untangling, unraveling, severing the tenticles that reached out for oxygen, for blood, for life. 

They did all they could not to open the tumor.  But it was massive.  They compared it to the shape and size of a flattened football...weighing anywhere from 8 to 10 pounds.

It was impossible to get it all.   Chemo would hopefully kill anything that floated away or remained attached to any organs after cauterization.  Radiation would hopefully kill anything still attached to the heart...while trying NOT to radiate and kill the heart itself.

Radiation appears to have worked.
Chemo? Not so much.

So here we are today.

Two years later, preparing for the next resection.  A microscopic piece of that tumor stayed behind.  It has been living and growing on the outside lining of his right lung.  In between his lung and his back.  By this past February, it had gotten large enough to see on the scans.  By observing it and tracking it every 3 months, it has finally gotten to the point where they feel it needs to be removed.

It is still the original cancer, neuroendocrine carcinoma.  Which means that the chemo didn't kill it.

And yet, somehow, we feel lucky.

Lucky to be alive, but more than that...
We feel lucky that the original doctors didn't know how bad it was.
Lucky that he was so healthy and his body recovered so well.
Lucky that our friends and family stepped in and took care of us.
Lucky that Albert has a great job and great insurance.
Lucky that we have each other.

Lucky that we get to do this all over again...




Friday, October 2, 2015

Day 2: done!!

Bert started the day by repeating his bone density test.  On Monday, his bone density test had to be stopped midway because the images were cloudy.  Apparently, the contrast used in the CT scan on Sauturday was still running its course, and causing the images to light up in all the wrong places.  We were crossing our fingers that enough time had passed or else we would be spending another day there!

Yay!!  The radiologist said he could work with the images even though the contrast wasn't completely gone...and we were off to meet with the endocrinologist, the last appointment this visit!

The endocrinologist checks on Albert's MEN-1 disease activity.  (The thing that's causing all these tumors.)

AND the report was ALL GOOD!!!

His MEN-1 is stable right now!  The hormone panel (blood work) showed everything to be within normal levels.  His blood calcium was still a little on the high side of normal, but it wasn't elevated like it has been.  That's definitely great news because when his hormones start getting wacky, that is an indication that tumors are growing or developing.  Sometimes the tumors will be cancer and sometimes they won't, but it's nicer when they aren't there at all!

As an added bonus, two of his meds got lowered.  That's how great he's doing!

Overall, this visit was very positive and a great relief in so many ways!!  Now we can stop worrying about the 'what ifs' and breathe again.

Next step:  get rid of the pesky tumor on his lung!  

Thanks for checking on us!
-Becca