Super Sunny Sunday!

This about sums up this month!

Those red socked feet are mine and I'm surrounded by fur.  Those boots and that beer completely update you on what Albert's been up to...work~then relax!

Honestly, this month was a big chunk of doing almost nothing.  A friend of mine helped me see that we spent so much energy getting to the one year mark for Albert, that we didn't plan on what we were gonna do once we reached that milestone.  

So maybe the month has been reflective...coming to terms with our new normal.  We've discovered that our new normal includes LOTS of recovery time.  

Do a chore...rest.   Eat a meal...rest.   Take a shower...rest.  Take a nap...rest.

Everything takes so much more energy and focus than it ever did before.  Forget things like yardwork or projects around the house.  Since Albert hasn't stopped working full-time, getting through the day is the big goal.

That being said, today was a super sunny Sunday!  It must have motivated my guy because he totally surprised me by working on some shelves for my office/guest room.  Using materials from the abyss, AKA, the garage...he fabricated some shelves and removed the existing contraptions I had in there.

I'm sure he completely wore himself out but I was so completely thrilled with his usual workmanship and attention to detail!  

 

YES, my walls are currently orange...left over from the son's decor...but they will soon be some shade of froggy green...very soon!

Now he's spending the rest of the evening watching the winter X games and ProBowl football...surrounded by furry pets, of course!

Thanks so much for stopping by and checking on us!

-Becca

2015! Wow!

January 6th...it's not too late to say "Happy New Year" everyone!

The holiday season brought a whirlwind of crazy for us.  AND lots of great quality time with friends, family and making great memories.

This week I've been focusing on getting back on track:

-Medical: Both of us need to re-focus and take better/more care of ourselves.

-Financial: I'm finally ready to re-focus on gainful employment.

-Enviromental: Get our home back in shape.

-Spiritual: Renew our spirit by giving back to our community.

It kinda sounds like new year resolutions, and I guess they are in a way, but we've been living day-to-day making new resolutions daily...sometimes our only resolution is to get through the day.

Right now, we are focusing on making visit-to-visit resolutions.  Planning our lives in 3 month increments.  For the first time, in a long time.

If feels wonderful~dare I say~back among the living!

Slow living, but still living.

Albert is adding a new doctor to the list.  A lung specialist. We hope to get him/her into the rotation when we visit MD Anderson in March.

Thank you for reading, commenting, and supporting our progress!

- becca 

Our Baby Girl Graduated!!!

Warning!!!  Another post with LOTS of pics!!!

This weekend we thoroughly enjoyed celebrating our awesome daughter, who earned her Bachelor of Arts degree in Music -- Vocal Performance!

It all started with the 400+mile trek through west Texas, to Sul Ross State University in Alpine!

We frantically gathered Saturday morning and anxiously awaited the commencement of the ceremony.

The cheer squad was poised and ready to make some NOISE!!!

The graduate made her appearance and that smile melted my heart!

She graduated with Honors, Cum Laude, and recieved gold cords from the Provost.

Then, received her diploma from the University President!

Walking back to her seat!  She was ALL SMILES!!!

And for those super observant types...the blue and green cords are representative of the Honor Society she belongs to!

The group pic after the ceremony:

Followed by a pic with her MVP, Most Valuable Professor!!!!

On the way to the reception, we picked up her doggie daughter and Toby!  They may have been excited too!

We then had a wonderful lunch reception with the whole gang!!

All in all, it was a terrific celebration throughout the weekend!  We had lots of quality time with the friends and family who were able to make the long trip, laughed way too much!, ate way too much!, some of us drank way too much!, and none of us got enough sleep!!  So I'd call that a SUCCESS!

Who knew in 2009 when we took a train to Alpine to visit the Big Bend National Park with myself, two other moms, one grandma, and 9 kids among us...that Kasey would end up LOVING this area and become so attached to it, that she now calls it HOME!

ÜBER PROUD PARENTS!!!

New day, new scans!

The most recent visit to MD Anderson was (in Albert's words) anticlimactic!

He got new chest and body scans.

Also new lab work.

Apparently, all is well.

Very little fluid around the lung, and practically NO fluid around the heart.

Good news, probably even great news.  However, he still has this dang cough.

So, the next question is, how do we get rid of it?  Of course, steroids are not good for long term use, and the cough med he's been taking is no longer very effective...so what do we do now?

Apparently, we wait until the radiation oncologist is back from vacation next week and see what his opinion is.  The good thing is that he will already have all the scans he needs to make a decision.  The bad thing is that this cough is pretty nasty.  So this means a few more days to tolerate this late onset symptom of radiation to the chest.

Also, we only saw the PA this time.   That's more good news, right?  That means his case isn't as critical as others, right?

Speaking of which.  I recognized a couple of newbies in the waiting area.  That bundle of nerves, the fear in each family member's eyes, not knowing what the doctor is going to say, but hoping against all hope that there is SOMETHING they can do!  The mom was the patient.  The grown daughter was home (maybe from college), doting on mom, the daughter still at home was glued to her social media on her phone.  Dad was doing everything possible to appear OK, but was just a jumble of bungled nerves...even forgot his backpack when they called the wife's name.  My heart went out to them.  Thinking of how scary that first visit is; and oh, how far we have come.

Lately, I find myself helping people find their way around the maze of hallways and buildings, giving directions to the pharmacy or the post office...helping them find the cafe that's open at the current time of day.  Yep, we've been there a couple of times!

I've chosen to think of our visits as quality time with my best friend.  Because, in truth, I'd rather be there with him than anywhere else by myself.  Every day together is a gift.  And if I'm still visiting MD Anderson in 4 years, I'll know that my guy beat the odds!!!!  He'll bust through that 0% that have survived before him!

Anticlimactic?  Yes!  and I'll take it ANY DAY!!

Thank you so much, to everyone!

This week, last year, Albert had his big surgery to remove Walter White from his chest!

A year later, we can only be thankful.

Thankful to co-workers, friends, and family who visited the hospital...brought food, gifts (including grocery cards and restaurant gift cards), flowers, plants, kind words, and shining smiles!

Thankful for our close circle of friends that took tremendous care of us for several weeks after...brought us food, cleaned our house, and kept us company!

Thankful to my sister and one of my besties for caring for our dog and cat children, EVERY TIME we had be away...including the long months in Houston!!

Thankful to our brother-in-law for keeping the lawn under control for a whole year now!!!

Thankful to co-workers who donated weeks upon weeks of sick time so that Albert could be getting treatments and still support our family!

Thankful to our friend in Houston, who is really more like a mom to us, who insists we stay with her, providing the MOST luxurious, relaxing, amazing suite of hospitality we could ever dream of; a home away from home!

Thankful to everyone who signed up and helped on the care calendar, with our yard and our trash cans, and the multitude of kind acts that were unexpected and so thoughtful!

Thankful to everyone who reads the blog and writes comments here or on Facebook!!!

Thankful for the entire team of folks on his medical journey!  Exceptionally gifted people whose compassion and expertise gave us hope...over and over again!

Thankful for our puppies, our most trusted therapists!

Thankful to RA for forcing me to stay home and be able to care for both of us!

Thankful for our children...they went through hell too...but lived to tell the tale.

Thankful for every new day that we are given to be together! 

We are thankful!  Oh, so very thankful!

They're Ba-a-a-a-ack!

The HAIR and the COUGH are both back, in full force!!!!

In fact, Bert's hair was getting too long for him, dare I say, reaching borderline mullet status!  It's thick and full, and CURLY in the back!  He's got that sexy hair thing going on again!

And with every haircut comes a little visit with our favorite hairdresser, so it's definitely a win-win!

_______________________

Unfortunately, the damn cough has slowly returned!

It started a few weeks back, here and there, a little dry, annoying cough.  It has morphed into the deep, painful, forceful cough that hurts all over and zaps his energy.  Yes, the one from this summer...the one that keeps him up all night...and makes him sound like he's about to cough up a lung!!

Thankfully, we have a visit coming up to MD Anderson in a couple of weeks.  We pray that it's something that can get taken care of quickly, like last time.  But it would also be nice if it wasn't coming back like this.  Last time, they said it was harmless fluid that was a result of radiation to the chest.  

They tested it last time, for cancer cells, but didn't find any activity.

I will be super thankful if his energy and health return as quickly again!  

Thanks for checking on us!

Finally! Some great news!!

Both kids tested NEGATIVE for the MEN1 genetic mutation!!!!

It took forever to find out, and of course, there was DRAMA!!!

The genetic counselor called the house looking for Jacob one afternoon.  But, he was at work!

Albert was still on the phone, getting NO information, because both kids are adults over 18, when Kasey started calling on the other line.  Apparently, she wasn't gonna wait and she called my cell phone.  She was crying and I was scared to death because I thought it had to be bad news! 

But it wasn't, her tears were tears of relief!  She felt so happy that she was in the clear!

The counselor left a message for Jake to call her back! but since he works every night until 10, we knew we weren't finding out that day, <sigh>!

The next morning he called, got voicemail.  Then called in the afternoon before he left for work, got voicemail, <double sigh>!!

Seriously, by the next morning, I was a nervous wreck!  I was cranky and harassing Jake until he called again just to appease me, you guessed it!  We got voicemail AGAIN!  <triple sigh>!!!

Jake was getting ready to head out to work and he stops to tell me, "oh yeah, I forgot to tell you, Ms. Jackson called"...pause...sad puppy dog eyes...I'm a ball of nerves...he's formulating his speech..."she said I'm negative!"

Let me tell you!  I was screaming and wanted to kick his scrawny butt to the moon!

Dammit!  We were on pins and needles for almost two full days...

How could we be happy that KC was in the clear, but what if Jake wasn't?  We couldn't celebrate too hard for her and make him feel like crap if his news wasn't good...

Torture is the only way I can describe it.

Let me tell you!

The celebration, elation, relief, utter happiness was indescribable!  They weren't gonna have to worry about this dreadful disease that was slowly taking their daddy!

Our family genes give us enough to worry about!  Diabetes, high blood pressure, heart disease, obesity...the list goes on!  At least there is ONE they wouldn't have to worry about!

The best part is that they also can't pass it on to their kids!  It's not recessive/dominant.

Albert's DNA had an omission that my DNA filled in!  Now they can only pass on the complete strand.

Thanks for all the prayers, I know they helped!

(P.S. I haven't forgotten to tell y'all about their day at MD Anderson, but I will, SOON!)